New year, new NHS rant and for my first post, I’d like to focus on how the health service cleverly re-labels everything so that like Derren Brown, a fantastical sense of illusion occurs tricking your mind into thinking there’s nothing really wrong with you.
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Great record! |
Creating this illusion involves clever hocus pocus so as to make your conditions seem better or more positive than they actually are.
If I were to say ‘chronic’ pain, what’s the first thing that comes to mind? I’m assuming you’d think of some agonising, fate worse than death scenario. The Oxford Dictionary offers us two definitions of the word ‘chronic’. The first when associated with illness means persisting for a long time or constantly recurring. The second more informal meaning is that whatever it is referring to is of a very poor quality ie bad.
The NHS has decided to re-badge chronic pain as ‘persistent’ pain. The word ‘persistent’ is in reality no different in meaning to the word ‘chronic’ but there is a subtle difference and they’re hoping this simple change of word may affect the way you perceive your pain.
The Oxford Dictionary definition of the word persistent is something that continues firmly or obstinately or continues to exist/occur over a prolonged period. A ‘persistent’ pain is one you may have had for a long time but doesn’t necessarily mean it’s a bad or acute pain (chronic).
Downgrading pain from ‘chronic’ to ‘persistent’ is a way of deluding patients into thinking there is not a lot that can be done to remedy their situation as this is often the case when dealing with a prolonged problem that you’ve become accustomed to living with.
Pain is all in your mind says the new school of NHS magicians. Of course it is. Most of us long term pain sufferers are just in it for the tea, sympathy and the odd biscuit that may come with that. NOT!!! Jedi mind trickery may be your recommendation as opposed to good old fashion medical/surgical interventions but it’s only a short-term fix and doesn’t effectively tackle many underlying conditions.
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Milk, no sugar and a bit of sympathy |
Essentially the new way forward is to get patients to learn how to lump it. Cheaper for the NHS if we can all live in harmony with our pain rather than fixating on how our health problems can be fixed for good.
Let’s put this into context with a couple of DIY analogies. In our first scenario, a clumsy carpenter accidentally clobbers their thumb with a large hammer. It hurts like hell and after a few hours, that thumb looks like an aubergine. Several expletives, a dollop of arnica cream and a cuppa later, they tell themselves it’s only minor and pain messages sent by the brain quieten down. Physical pain yes but not long lasting.
Fast forward to second scenario where same clumsy carpenter has now hammered a 6 inch nail into their index finger. Hurts like f**k, blood everywhere and carpenter’s pain-o-meter is off the scale. No amount of meditation or paracetamol is going to help here. What they need is for the nail to be removed, stitches, hard-core pain relief and a few days off work. Physical pain is likely to persist until the underlying cause ie nail removal is actioned and no personal pep talk is likely to change that.
Continuing with the DIY analogies, let’s look at my own chronic pain problem. I have a herniated disc affecting 4 vertebrae in my neck which I’ve lived with for the past 20 or so years. My condition is being constantly reclassified by the NHS – it’s been called everything from cervical stenosis, spinal stenosis, degenerative disc disease to spondylosis. It’s truly a job to know what I’m suffering from these days because every time I see a new specialist, they call it something else leaving me even more confused.
Basically, the cushioning between these 4 vertebrae is disintegrating, leaving bone to grind on bone and giving rise to inflammation. To compensate, my body has produced bony growths (osteophytes) sort of cementing the spine together, causing nerve root compression and all manner of other peripheral issues affecting my arms and legs. Pain is my constant companion. Painkillers are my best friends. Let’s just say this situation isn’t going to get better any time soon and is likely to worsen with age.
Now if I was dealing with these mechanical issues from a DIY perspective then by now I would have chiselled off the bony growths, removed the crumbling cushioning and replaced this with some kind of flexible foam or filler to support each vertebra independently. I probably would have thrown in some lagging to prevent everything falling out of place afterwards until the filler had set.
I appreciate a spinal column is not something you can tinker with in quite the same cavalier fashion but surely chronic pain caused by bone related mechanical issues could be dealt with in a similar way?
It appears not. For the past 3 years, the NHS have sent me from pillar to post. I’ve had every type of scan known to mankind, met a myriad of medicos and tried a plethora of complimentary therapies (acupuncture, aromatic or sports massages, chiropractic manipulation, hot stones, cold sprays, therapy guns, counselling, etc, etc) but to no avail because clearly it’s all in my mind so what the NHS should have offered me is either a lobotomy or a course of electro-shock therapy. I’m surprised no-one suggested cold baths, hypnotism or a psychiatrist but maybe this will be on the cards when I visit the next specialist.
It truly beggars belief the lengths this health service will go to in order to save money and NOT provide any kind of actual treatment for patients. By the time my condition gets to its event horizon, I shall doubtless be too old to survive any kind of general anaesthetic or I’ll be in a wheelchair and it will be too late to do anything about it – mind or otherwise.